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Our Kids

Our Janeway Kids

Each  Janeway Kid has a story to tell. Their Janeway Journey. They inspire us with their courage and determination.

2024 Champion Child
John Bennett
Cystic Fibrosis

Imagine taking your sweet newborn home, only to realize he is not growing or gaining weight, failing to thrive. This was all too familiar in 2010 for first time parents John and Gillian Bennett. The Janeway team diagnosed their son John with cystic fibrosis, a disorder that damages the lungs, digestive tract and other organs. John’s tiny body wasn’t able to digest food so he was basically starving. The Janeway team quickly started him on digestive enzymes and they saw a major improvement overnight, although his parents quickly realized their Janeway Journey had just begun.

John is a familiar face at the Janeway, he has regular x-rays and bloodwork and undergoes an extensive checkup every three months using donor funded equipment at the Janeway to monitor his CF symptoms. Thanks to the Janeway CF team, his family and our incredible community support, John is thriving. He has a daily therapy regime including preventative treatments so John can be the super star athlete he is, both in the rink and on the soccer field.

Here’s the link to John’s story.

“I have CF, but I am healthy and thriving because of the CF team at the Janeway, they are part of my family. I just want to thank them for everything.” – John, 2024 Janeway Champion

Paisley Spracklin

Paisley is an absolute treasure, winning the hearts of her family and the staff in the Janeway’s Neonatal Intensive Care Unit (NICU). Dad Jeremy said, “I could not believe how one so tiny could be so strong. And boy is she strong.”
She may have weighed only 1 lb. 8 oz. at birth, but she is a fighter.

Paisley was born at 24 weeks and one day gestation and needed lifesaving care that only the Janeway NICU team could provide.

The NICU has been home to Paisley and her parents for more than 160 days. Thanks to donor funded equipment, the NICU team has the tools they need to give Paisley extra supports while she grows stronger.
Jill Parsons Haynes, one of Paisley’s nurses said, “The best thing is having the opportunity to feed Paisley and to get Paisley snuggles.”
Mom and Dad are so thankful for the Janeway. The staff are part of their family.

“Two days after Paisley was born, I got to hold her for the first time, terrified but overjoyed. The respiratory therapist and her nurse helped take her out of her incubator (connected to monitors, multiple IV’s and intubated) and gently placed her in my arms. As scary as it was, they made that moment one I will cherish forever.” – Mom, Emily

Here’s the link to Paisley’s story.

James Moss
Emergency Brain Surgery

James Moss was just your average kid learning, playing and having fun, that is until January 18th, 2023, when James started to get what Mom and Dad, Suzette and Brad thought was a normal headache. They gave him pain medication, but quickly realized James was getting worse by the minute and now in excruciating pain, they headed to the one place they knew could help their son – the Janeway.

James was rushed to the Emergency Department and admitted right away. He underwent several tests including a lumbar puncture, two CT scans, EEG and MRI to discover that James needed emergency brain surgery.
There was an infection in the base of his brain that was causing fluid build-up. This was putting pressure on his brain, causing incredible pain. The surgical team removed the infection and a thumb-sized portion of the cerebellum (the cerebellum maintains balance, coordinates body and eye movement).

James’ family was terrified, knowing the possible risks as their youngest child entered a dangerous procedure that could affect James’ quality of life – they trusted the Janeway team and equipment available to help save their son.

When James finally had his oxygen removed, a tiny, weak voice told a joke, and they all knew he was going to be ok. Today James is a heathy, happy 9-year-old who loves school and beating everyone at chess.

“James is our little Janeway miracle. We will be forever grateful for the team at the Janeway that saved his life and the amazing nurses that cared not only for James but went above and beyond to make sure that we were cared for as well. How can we ever thank them.” – Mom, Suzette

Here’s the link to James’ story.

Kali Ash
Depression and anxiety

Kali is a smart 17-year-old girl who learned younger than most what it means to have a new outlook on life. Like many teens growing up, Kali underwent challenges, and went through a time where she felt alone, and didn’t have a will to live.

Kali’s mom, Deanne, turned to the Janeway to help save her child. Kali was able to access support at the Janeway including regular therapy and virtual counselling sessions. She has learned about what was going on with her body, and more importantly had the supports and tools she needed to become more aware about her mental illness, and how to navigate through her most difficult times.

Kali has been fighting a battle with depression, anxiety, and an eating disorder. Through all this Kali is determined to be well, taking life one day at a time. Kali has learned that even though she can still have bad days, she is living, and has skills to help get her through anything life throws at her.

Kali wanted to share her story with others so people out there know they are not alone. “For someone who is going through the same thing as me or through any difficult spot in their life, it’s important to remember things will get better and we have to fight for it.” – Kali

Here’s the link to Kali’s story.

“The Janeway team has been an incredible support to Kali and our family. They have given us hope and changed our lives. I am so grateful for the help that we have and continue to receive.” – Mom, Deanne

Rowan Noseworthy
Wolf-Hirschhorn syndrome (WHS)

Rowan was diagnosed at 11 days old with Wolf-Hirschhorn syndrome (WHS), a rare genetic disorder that affects many parts of the body. Rowan is the only person in our province with this condition.

The Janeway team works diligently with Rowan’s family to have the tools and resources they need to support Rowan and help him reach new milestones.

Rowan has been seen by every department at the Janeway. Earlier this year, he had a stay in the Pediatric Intensive Care Unit (PICU) after experiencing a severe seizure, lasting 60-90 minutes, Rowan didn’t let that stop him, as he continues to accomplish new tasks at the Janeway, home, and in daycare with his friends.

Here’s the link to Rowan’s story.

“We are forever grateful for the compassion and care we receive from his team each time we visit. They are always available to brainstorm when new issues arise, guide us when we struggle, and are all around just a positive support system. His team are just as enthusiastic about Rowan’s progress as we are!” – Mom, Brittany