Telethon

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Telethon

Telethon 2022

The Funds you raise are so important for our children’s healthcare,
helping in the early diagnosis and treatment of illness and injury.

Let’s give our children every opportunity to live their best lives.

Here is a snapshot of some of the specialized medical tools
your gifts to the Telethon will purchase.

Help raise $2.5 million to make this happen!

Support the 2022 Telethon
Learn more about how you can help here.

Tune in to
the Telethon on NTV

Saturday, June 4th
6:30pm – 9:30pm*
— and —
Sunday, June 5th
12:00 noon – 7:00pm*

NTV logo

Share your X-Ray Superpowers!

The health and safety of our children comes first. Kids who require emergent surgeries or those rushed to the Emergency Department after suffering a trauma, cannot always be taken to the
Diagnostic Imaging Department for a vital x-ray. Thankfully the mobile x-ray unit can be brought to their bedside or to the operating room. Your gifts will purchase a digital portable x-ray machine
for the Janeway that will make sure our healthcare heroes have the x-ray vision they need to save the day!

The gift of Super Vision!

If a child’s sight or senses are not working as they should, it’s harder to socialize, read or continue to develop. The eye specialists at the Janeway care for so many of our children – premature
babies in the Neonatal Intensive Care Unit; children who have suffered a traumatic eye injury or those affected by certain medical conditions. Your gifts will buy specialized pieces like a visual acuity system, a phoroptor, and a slit lamp, all new equipment that will detect problems early and make sure that kids can see, learn, play, and get better!

Superheroes perform with efficiency and ensure everyone is safe!

Pediatric patients come in all sizes, from a premature baby weighing less than 1000 grams to a 17-year-old weighing 180 pounds. Each child’s size plays a vital role in the specialized medical equipment and supplies needed and the medication dosage that they require.

A lot of time, energy, and resources in a kid’s hospital goes into making sure the right equipment and medication is at the right place at the right time. There’s a more efficient way to do it — a department-wide pediatric supplies and medication dispensing system; a Pyxis!

This system will allow doctors and nurses to spend more time at the child’s bedside and less time reviewing dozens of pages of medication forms. It will make sure that the perfect size (of 12 differently sized) airway tubes is right there when the Janeway respiratory therapists need them. It will support the delivery of exceptional care all across the hospital and make sure that the needs of the children always come first.

The Pyxis is the ultimate tool in delivering the best care possible.  It’s efficient for healthcare providers, reduces healthcare spending and most importantly, it’s safer –  a huge win-win!

 

Donate Today to support the 2022 Telethon and the healthcare of Newfoundland and Labrador children.

Janeway Kids

Champion Child, Xavier Rodrigues (Crohn’s Disease)

Xavier is a fighter!  Crohn’s will never beat this amazing young man!

Xavier was just seven years old when his medical journey began.  A journey that he and his family could never have imagined, would last a lifetime.

Xavier loved hockey and was on the rink three times a week.

But, at the age of seven, he became very sick. He had no interest in food, lost weight, and became weaker each day. After numerous trips to the Janeway and many tests, Xavier continued to become sicker. Finally, he was admitted to the hospital and within days his doctor diagnosed Crohn’s, a bowel disease that causes chronic inflammation.

Most people with Crohn’s disease can enjoy healthy, active lives. While there isn’t a cure, treatments and lifestyle changes can keep the disease in remission and prevent complications. But finding that right balance can be tricky.

Through trial and error, Xavier was put on numerous medications. These medications came with painful injections of a chemotherapy given at home and a day-long intravenous (IV) infusion at the hospital every six to eight weeks.

Xavier missed a lot of school but with the support of his teachers and friends, he managed to keep up. He then got his second wind when one medication finally succeeded.

Xavier did well for two years until that medication became ineffective and they had to try another. He was hospitalized again, found another one that worked, and has been doing better ever since.

He currently has an IV-infusion every eight weeks. Plus, he is on a restrictive diet to help manage his symptoms – meaning no typical foods for a teenager like processed food, sugars, or carbohydrates.

Xavier gave up hockey because of lower energy levels and to avoid getting accidentally hurt. But he is now active in lots of other wonderful ways, playing video games and making YouTube videos with his friends.

“They were so genuinely concerned about Xavier. I can’t say enough beneficial things about the way the Janeway treated us and our son.”   Dad, Lionel

Miracle Kid, Raya Murray (Rett Syndrome)

Raya has been described by many as a ray of sunshine!  Raya lights up a room, and puts a smile on the faces of all those around her.  Even her therapy horse Pickles, that she absolutely loves, is so gentle with Raya.

Just before Raya’s second birthday, she was diagnosed with Rett Syndrome, a rare neurological disorder that leads to severe impairments that affect all aspects of her life, her ability to speak, walk, eat, and even breathe easily.  Rett Syndrome causes almost consistent hand movements, making purposeful hand use nonexistent.

Raya has a team of medical professionals at the Janeway who see her regularly, Drs. Martin, O’Dea, Buckley and Bramwell and her therapists in Development and Rehabilitation.  And of course, Pickles, her therapy horse at Rainbow Riders.

Raya actually took her first steps with her physiotherapist Shawna Sparkes.  As mom said, “there was not a dry eye in the rehab gym that day, it was the best day of their lives.  The Janeway Team are like family.  Shawna is such a kind, caring person, she knows how far to push Raya to get the best results and she always has time for a cuddle. 

Mom contributes Raya’s progress to the care she receives at the Janeway from her incredible Team.

Miracle Kid, Aiden O’Keefe (Acute Lymphoblastic Leukemia)

Aiden’s strength and resilience is an inspiration to all who know him.

Aiden loves sports, video games, spending time with his family and friends and, of course, teasing and having fun with his younger sisters.

But in December 2020, just weeks before Christmas, Aiden and his family would move to St. John’s to be closer to the Janeway and the treatments and care that he would need.   December 11 Aiden was taken to the hospital in his hometown of Goose Bay with severe upper leg and groin pain.  Blood work revealed that there was something serious happening to Aiden.

On December 14, 2020, Aiden was diagnosed with B-Cell Acute Lymphoblastic Leukemia and he and his family would spend the next 10 months living close to the Janeway at Ronald McDonald House.

When Aiden was first diagnosed, he was at the Janeway daily.  Now that he is in the maintenance rounds of his treatments, he travels to the Janeway every three to four weeks from his home in Goose Bay.   To date Aiden has had numerous blood tests, two bone marrow biopsies, several lumbar punctures, three surgeries, x-rays, ultrasounds, a head CT and so much more.

Christmas 2020 was spent at the Janeway.  As mom Donalda recalls, “that Christmas was very special to us.  One that will never be forgotten.  We decorated Aiden’s room at the Janeway with lights, decals, homemade construction paper chains, a snowman on his bathroom door and a small tree in the corner.  There were pictures that his sisters drew for him and gifts from different Janeway departments and so many others.  Santa even came by for a visit.  Everyone went above and beyond for Aiden, and I am truly thankful.”

After Aiden finishes his treatments in April 2023, he will continue his check-ups at the Janeway with his oncology team to ensure that all is OK.

Miracle Kids, Maggie and Beth Ryan (Twin to Twin Transfusion Syndrome)

Maggie and Beth’s story began when mom Heather was just 17 weeks pregnant and diagnosed with TTTS (twin-to-twin transfusion syndrome, a rare pregnancy condition affecting identical twins or other multiples.)  The twins were given an extremely low chance of survival.  But these little fighters had other plans.

Mom needed surgery right away to ensure their babies had every advantage possible to survive.  Through the worry and fear of the unknown Mom and Dad Frank faced every obstacle, travelling to Mount Sinai for emergent surgery and then being closely monitored by the Janeway Team, as mom was at a higher risk of preterm labor.

At 28.5 weeks gestation the twins were ready to meet their mom and Dad.  Maggie was born at 2lbs. 19 oz.and Beth at 2lbs. 11 oz.

Both Maggie and Beth immediately needed oxygen and help breathing and were rushed into the NICU for the special care that they required.  68 days later, Maggie and Beth were ready to go home, an incredibly happy day for mom and dad and little brother, Charles.

“The Janeway provided our girls with specialized medical knowledge and technology that allowed our tiny but mighty fighters to thrive.  They are truly our little NICU Warriors!”    Mom – Heather

Miracle Kid, Hunter Whelan (Ependymoma – a rare slow growing tumor)

Brave, courageous and determined, three words that certainly describe Hunter!

On October 17, 2020, 11-year-old Hunter, underwent an extensive eight-hour surgery at the Janeway to remove a rare tumor from his spine.

For years he had been suffering through extreme pain, both in his back and his legs. He developed problems eating and kept losing weight.

There were so many visits to doctors and the emergency room, with diagnosis ranging from growing pains to a spinal disc problem. No matter what was tried, nothing worked.

On Thanksgiving weekend 2020, Hunter was in agony. He was rushed to the Janeway emergency room, where a bone specialist, was called in. He watched Hunter walk and ordered an MRI right away.

Hunter had a large, slow-growing tumor located on his spine.  Hunter went through an almost eight hour surgery, recovery and rehabilitation. The pathology results confirmed the tumor was benign and Hunter’s neurosurgeon confirmed they got it all!

“The team at the Janeway helped us through the scariest time in our lives.  We are forever grateful.”      Mom, Gill

 

Stay tuned for information about Hospital Features and talented Entertainers and Hosts who will be joining us for the 2022 Janeway Children’s Miracle Network Telethon.

 

Janeway Foundation Logo      Children's Miracle Network Logo

If you have any questions regarding the Janeway Telethon broadcast, or how we can help you with your fundraising plans, please contact the Janeway Foundation office: 709-777-4640 or janewayfoundation@easternhealth.ca.

* Dates may change depending on COVID-19 Alert Level Status